Maddison Ohs, Tube Feeding

Tummy Tunnels

Iron on patches for feeding tubes

Unfortunately, when it comes to finding clothes for a baby with a feeding tube, it’s not one-size fits all. Thankfully I was introduced to Tummy Tunnels™ shortly after Maddison had her g-tube placed. The iron-on patches allow for easy adaption to most clothing to accommodate access for the feeding tube.
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Maddison Ohs, Special-Needs Parenting

Family Beach Trip 2018

Taking our Tubie to the beach

When you think about going to the beach with children, you know it’s going to be a lot of work, but for the most part it’s pretty straight forward. You pack the basics; towels, umbrella, snacks, floaty, sunscreen… You give them a bucket and a shovel and they play for hours.

Life with Maddison isn’t straight forward though, and I was slightly intimidated taking Maddison on her first real beach experience. Medically complex children tend to make things a little more… complex. But I did my best to think everything through ahead of time. I knew that doing something like a beach trip on a whim just isn’t possible,  so I had to make sure I did some serious planning before we left the house.
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