Tube Feeding

Top 10 Items Every Tube Fed Child Needs

My favourite 10 items for raising a tube fed child

There are so many things involved when your child is tube fed (as if raising children wasn’t hard enough). There are syringes, feed bags, pumps to operate, rates to calculate, dosages to draw up, and of course a lot of mess. It is a lot of hard work, and you can pretty much earn your degree in medicine from the amount of hours you will put in to feeding your child.  Continue reading “Top 10 Items Every Tube Fed Child Needs”

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Tube Feeding

Talking to parents of tube fed children

How to talk to a parent whose child has a disability, without offending them

I recently did a quick survey through my Instagram stories, super scientific, I know. In my stories I asked parents who had children who used feeding tubes to share with me what they hated people to say when asking about their child’s feeding tube, and what they would prefer people to say to them instead. I received so many messages from my followers weighing in on the subject.

Although most of the responses were similar to how I would prefer people to interact with me about my own daughter’s feeding tube, some of the messages surprised me.

Continue reading “Talking to parents of tube fed children”

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